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Centre for Policy on Ageing | |
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| The subjective experience of individuals with Down syndrome living with dementia | | Author(s) | Vicki Lloyd, Sunny Kalsy, Amanda Gatherer |
| Journal title | Dementia: the international journal of social research and practice, vol 6, no 1, February 2007 |
| Pages | pp 63-88 |
| Source | http://www.dem.sagepub.com |
| Keywords | Cognitive impairment ; Dementia ; Personality ; Adjustment ; Qualitative Studies. |
| Annotation | An increasing number of studies have begun to explore the subjective experience of individuals with dementia. However, despite the increased prevalence of dementia in individuals with Down syndrome, no such published research has been undertaken within this population. The aim of this study was to explore the perspectives and subjective experiences of six individuals with Down syndrome and dementia. Semi-structured interview accounts were analysed using Interpretative Phenomenological Analysis (IPA), in order to gain a level of understanding concerning the impact of dementia upon respondents' lives and sense of self. Five main themes emerged: self image; the relational self; making sense of decline; coping strategies; and emotional experience. Whilst the process of adjusting to dementia appeared comparable to the general population, the content of this was influenced by multiple levels of context specific to having a concomitant intellectual disability. (KJ/RH). |
| Accession Number | CPA-070510208 A |
| Classmark | E4: EA: DK: DR: 3DP |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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