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Centre for Policy on Ageing | |
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Participatory research
— a method for process consent with persons who have dementia | | Author(s) | Jan Dewing |
| Journal title | Dementia: the international journal of social research and practice, vol 6, no 1, February 2007 |
| Pages | pp 11-26 |
| Source | http://www.dem.sagepub.com |
| Keywords | Dementia ; Rights [elderly] ; Social ethics ; Participation ; Qualitative Studies ; Research ; Methodology. |
| Annotation | Consent theoretically threads through the whole qualitative research method, so getting this right can set the tone for person-centred relationships between researcher and participants. However, most attention has been given in the UK to cognitively biased informed consent and to consent taking place at the beginning of projects; and in North America to assent or the lack of objection. The method in this article is based on the premise that for people with a dementia, informed consent becomes increasingly redundant and consequently exclusionary to them as individuals. This article sets out and describes a method for consent that focuses on people with dementia, traditionally excluded from consent and thus from research, and also refocuses on consent as a process that runs through the whole of a research project. It also suggests that use of this model can strengthen the assent process. Examples from two contrasting doctoral studies are offered to illustrate the method in action. The first study investigates wandering in older persons with dementia living in a nursing home. The second study is a randomised control trial investigating an intervention for heel sores in older people with dementia as patients on orthopaedic wards in a general hospital. (KJ/RH). |
| Accession Number | CPA-070510205 A |
| Classmark | EA: IKR: TQ: TMB: 3DP: 3A: 3D |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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