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Centre for Policy on Ageing | |
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Key challenges and ways forward in researching the "good death"
— qualitative in-depth interview and focus group study | | Author(s) | Marilyn Kendall, Fiona Harris, Kirsty Boyd |
| Journal title | British Medical Journal, vol 334 no 7592, 10 March 2007 |
| Pages | pp 521-524 |
| Source | http://www.bmj.com |
| Keywords | Death ; Dying ; Attitude ; Research ; Qualitative Studies. |
| Annotation | An international sample of 32 researchers, 7 patients with experience of cancer, and 4 carers in south east Scotland participated in this focus group study. Researchers highlighted the difficulty of defining the end of life, overprotective gate-keeping by ethics committees and clinical staff, the need to factor in high attrition rates associated wtih deterioration or death, and managing the emotions of participants and research staff. People affected by cancer and researchers suggested that many people nearing the end of life do want to be offered the chance to participate in research, provided it is conducted sensitively. Although such research can be demanding, most researchers believed it to be no more problematic than many other areas of research, and that the challenges identified can be overcome. The continuing taboos around death and dying act as barriers to the commissioning and conduct of end of life research. Some people facing death, however,may want to participate in research and should be allowed to do so. Ethics committees and clinical staff must balance understandable concern about non-maleficence with the right of people with advanced illness to participate in research. Despite the inherent difficulties, end of life research can be conducted with ethical and methodological rigour. Adequate psychological support must be provided for participants, researchers and transcribers. (RH). |
| Accession Number | CPA-070327202 A |
| Classmark | CW: CX: DP: 3A: 3DP * |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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