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Components of coordinated care
 — a new instrument to assess caregivers' and care recipients' experiences with networks of dementia care
Author(s)Rhonda Cockerill, Susan Jaglal, Louise Lemieux Charles
Journal titleDementia: the international journal of social research and practice, vol 5, no 1, February 2006
Pagespp 51-66
Sourcehttp://www.dem.sagepub.com
KeywordsDementia ; Family care ; Services ; Coordination ; Interaction [welfare services] ; Evaluation ; Canada.
AnnotationThe development of an instrument to measure dementia clients' and their families' experiences with care provision formed part of a larger project studying dementia care networks in Ontario, Canada. Using the responses of 367 care recipient/caregiver dyads, exploratory factor analysis was used to extract an underlying structure of the dyads' assessments of their experiences of dementia care networks. Results suggest that from the perspective of the care recipient and caregiver, it is the individuals with whom they interact in their care journey that define and shape the evaluation of their experiences. In the early stages, the family doctor plays a central role in helping dyads understand the disease. In the later stages, the activities of the health care worker are central to dyads' lived experiences of care received. The third important construct linked to the period when a care recipient and caregiver dyad was increasingly aware that dementia services may be needed and the process of assessment and placement was under way. Having information about what resources are available and how they can be assessed, and being able to complete assessments and placements in a timely fashion, were central to their assessment of care networks. (RH).
Accession NumberCPA-060314214 A
ClassmarkEA: P6:SJ: I: QAJ: QK6: 4C: 7S

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