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Centre for Policy on Ageing | |
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Traversing the network
— a user-led Care Pathway approach to the management of Parkinson's disease in the community | | Author(s) | Margaret Holloway |
| Journal title | Health & Social Care in the Community, vol 14, no 1, January 2006 |
| Pages | pp 63-73 |
| Source | www.blackwellpublishing.com/hsc |
| Keywords | Parkinson's disease ; Community care ; Management [care] ; Interaction [welfare services]. |
| Annotation | The Care Pathway approach conceptualises the user or carer as the "communications centre", with professionals managing their situation to achieve an integrated, personal care package. This article reports on a pilot study to develop and implement a Care Pathway framework for people with Parkinson's disease (PD) and their carers. Care Pathway tools, comprising a local information pack, a Problems/Needs form, a Clinic Summary and a service record sheet, were designed by a working party of service providers, a service user and carer, and the researchers. The use of the framework was evaluated by following the progress of 22 people with PD over a 12-month period. Start and end-point data on patient characteristics, social circumstances, severity of illness and recent/current use of services were collected. The separate tools and the contribution of the framework to the management of the illness wee evaluated through semi-structured interviews with participants and their carers, and focused interviews with the participating neurologist and specialist nurse at the end of the 12 months. Participants' situations showed very little change overall. The people with PD and their carers were very enthusiastic about the Care Pathway, particularly the problem/needs form which they felt facilitated their active engagement in their own care. Very few service record forms had been used. The neurologist and specialist nurse were equally enthusiastic enthusiastic, and envisaged that full use of the framework with all service users would greatly improve the care of their patients. However, its effectiveness in contributing to the better management of PD overall requires further testing. (RH). |
| Accession Number | CPA-060314211 A |
| Classmark | CR6: PA: QA: QK6 |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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