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Centre for Policy on Ageing | |
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Experiences in early stage Alzheimer's disease
— understanding the paradox of acceptance and denial | | Author(s) | Colleen R MacQuarrie |
| Journal title | Aging & Mental Health, vol 9, no 5, September 2005 |
| Pages | pp 430-441 |
| Source | http://www.tandfonline.com |
| Keywords | Dementia ; Early ; Attitude ; Adjustment ; Longitudinal surveys ; Canada. |
| Annotation | A wealth of information about the biomedical aspects of Alzheimer's disease (AD), the most prevalent dementia among people aged 65+, stands in contrast to the lack of systematic inquiry around the lived experiences of people with AD. 13 people (4 men, 9 women), recently diagnosed with early stage AD, participated in this 6-month Canadian longitudinal study. This paper reports on participants' interviews which focused on their experiences of AD symptoms, relationships with family and friends, and thoughts about the future. The transcribed interviews, analysed using methodological hermeneutics, revealed a constitutive theme of agency versus obfuscation and explained the paradox of why people with AD use both acceptance and denial when speaking about their experiences. Participants simultaneously acknowledged and resisted aspects of their disease in order to maintain agency in the face of cognitive losses. Acknowledgement was expressed through the themes involving acceptance of the disease and its symptoms, expression of feelings about the disease, and strategies to cope with the symptoms. Resistance was expressed in themes involving denial, minimisation, normalisation, and reminiscence about achievements and experiences of competence. Longitudinal analysis or the narrative indicated themes held across time. This research contributes to understanding how people live with early stage AD. Living with AD should not be described as either denial or acceptance, but rather as a paradox of understanding that includes both acknowledgement and resistance. (RH). |
| Accession Number | CPA-060202228 A |
| Classmark | EA: 4J: DP: DR: 3J: 7S |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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