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Alzheimer's dementia in persons with Down's syndrome
 — predicting time spent on day-to-day caregiving
Author(s)Mary McCarron, Michael Gill, Philip McCallion
Journal titleDementia: the international journal of social research and practice, vol 4, no 4, November 2005
Pagespp 521-538
Sourcehttp://www.dem.sagepub.com
KeywordsDementia ; Cognitive impairment ; Home care services ; Care support workers ; Time duration ; Costs [care] ; Measurement ; Ireland.
AnnotationThe Caregiving Activity Survey - Intellectual Disability (CAS-ID) was completed by caregivers in Ireland of 63 people with Down's syndrome (DS) and Alzheimer's dementia (AD) and 61 people with DS without AD. Data was also gathered on co-morbid conditions. Regression analysis was used to understand predictors of increased time spent on day-to-day caregiving. Significant differences were found on average time spent in day-to-day caregiving for people with and without AD. Mid-stage and end-stage AD and co-morbid conditions were all found to predict increased time spent caregiving. The nature and tasks of day-to-day caregiving appeared to change as AD progressed. The study concluded that staff time to deal with day-to-day caregiving needs appeared to increase with onset of AD, and did so more dramatically for those with moderate intellectual disability. Equally, while the tasks for staff were different, time demands in caring for people at both mid- and end-stage AD appear similar. (RH).
Accession NumberCPA-051219214 A
ClassmarkEA: E4: NH: QRS: 4N: QDC: 3R: 763

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