Centre for Policy on Ageing



Researching older people with dementia in supported housing
Author(s)	Simon Evans
Journal title	Generations Review, vol 15, no 4, October 2005
Pages	pp 3-7
Source	(Editorial e-mail address) gr@ageing.ox.ac.uk
Keywords	Dementia ; Residents [care homes] ; Sheltered housing ; Participation ; Research ; Social ethics.
Annotation	Despite calls for greater user involvement in service evaluation and development, the views and experiences of people with dementia are excluded from much research. Reasons include assumptions about levels of awareness, doubts about the validity of accounts, the challenge of informed consent and over-reliance on obtaining views by proxy from formal and informal carers. This paper explores the benefits of directly including the voices of people with dementia in research, and identifies a range of strategies for overcoming the methodological challenges of a more inclusive approach. Examples from a study that aimed to explore the characteristics and suitability of extra care housing from a user perspective illustrate ethical dilemmas and practical challenges, including the role of gatekeeper, gaining informal consent and meeting the specific needs of people with dementia as research participants. (RH).
Accession Number	CPA-051122201 A
Classmark	EA: KX: KLA: TMB: 3A: TQ
Data © Centre for Policy on Ageing

...from the Ageinfo database published by Centre for Policy on Ageing.