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Centre for Policy on Ageing | |
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What constitutes health related quality of life in dementia?
— development of a conceptual framework for people with dementia and their carers | | Author(s) | Sarah C Smith, Joanna Murray, Sube Banerjee |
| Journal title | International Journal of Geriatric Psychiatry, vol 20, no 9, September 2005 |
| Pages | pp 889-895 |
| Source | http://www.interscience.wiley.com |
| Keywords | Dementia ; Health [elderly] ; Quality of life ; Informal care ; Literature reviews ; Qualitative Studies ; London. |
| Annotation | The evaluation of multi-dimensional outcomes such as health-related quality of life (HRQL) is particularly relevant in dementia when the disease can compromise all areas of functioning. The nature of dementia can make self-report difficult, yet the subjective nature of HRQL makes the value of proxy reports limited. Previous work suggests that there are domains of HRQL that are unique to dementia. The authors aimed to develop a conceptual framework of HRQL in dementia from the perspective of people with dementia and their carers, and to examine differences in reports of the HRQL of these two groups. They combined existing literature and new qualitative data (for a sample of 19 people with dementia from local secondary services in London and their carers), to develop the conceptual framework, and analysed qualitative data using content analysis. They identified five domains: daily activities for looking after yourself; health and well-being; cognitive functioning; social relationships; and self-concept. Each was defined by specific descriptive components. There were differences between people with dementia and carers and the way they described these domains. The conceptual framework provides the basis for the development of a new measure of HRQL in dementia (DEMQOL). (RH). |
| Accession Number | CPA-051108217 A |
| Classmark | EA: CC: F:59: P6: 64A: 3DP: 82L |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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