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Who cares?
 — contextual layers in end-of-life care for people with intellectual disability and dementia
Author(s)Liz Forbat, Kathryn Pekala Service
Journal titleDementia: the international journal of social research and practice, vol 4, no 3, August 2005
Pagespp 413-432
Sourcehttp://www.dem.sagepub.com
KeywordsCognitive impairment ; Dementia ; Terminal care ; Therapy ; Management [care] ; Informal care.
AnnotationThe complexity of the relationship between intellectual disability (ID) and dementia is increasingly acknowledged. In order to operationalise a route towards person-centred care, the authors introduce W B Pearce's hierarchy model as a tool to focus the attention of policy and practice in all aspects of caregiving. This tool, which is taken from the family therapy literature, enables practitioners to examine the broad systems that impact on the delivery and receipt of care. The authors focus on its utility in scrutinising end-of-life and later stages of dementia by illustrating its use with three key areas of dementia care: nutrition, medical interventions, and the location of care provision. These areas provide some of the most challenging situations at the end stages, because of the possible treatment options. The model provides a focused approach to understanding how meaning is created within social interaction. The article draws on implications for practice and policy and has applications for practice internationally. (RH).
Accession NumberCPA-050912212 A
ClassmarkE4: EA: LV: LO: QA: P6

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