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Centre for Policy on Ageing | |
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Measures to assess the quality of life for people with advanced dementia
— issues in measurement and conceptualisation | | Author(s) | Lauren Thompson, Paul Kingston |
| Journal title | Quality in Ageing, vol 5, no 4, December 2004 |
| Pages | pp 29-39 |
| Source | http://www.pavpub.com |
| Keywords | Dementia ; Quality of life ; Evaluation. |
| Annotation | With the increase in the development of treatments that aim to improve the symptoms of dementia, more attention is focused on the effect that these treatments have on the patient's quality of life (QoL). There are specific challenges to be met in measuring the QoL of a patient who is in the later, more severe, stages of dementia. The main challenge is whether the QoL measure can measure QoL in an individual who is unable to provide a subjective report on his or her own QoL. This paper presents five QoL measures that have been designed to measure the QoL of patients with severe dementia who are unable to provide self-reports. The measures are: Albert et al's (1996) Activity and Affect Indicators of QoL; Quality of life in late-stage dementia (QUALID) scale; dementia care mapping (DCM); Psychological well-being in cognitively impaired persons (PWB-CIP); and Alzheimer's Disease Related Quality of Life (ADRQL). All were found to have moderate to good reliability and validity. However, the question still remains that without a subjective account, such as a self-report from a person with dementia, is the outcome of these QoL measures a true reflection of the patient's QoL? (RH). |
| Accession Number | CPA-050620208 A |
| Classmark | EA: F:59: 4C |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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