| |
Centre for Policy on Ageing | |
 | |
|
| A qualitative study of the experiences of long-term care for residents with dementia, their relatives and staff | | Author(s) | G H Train, S A Nurock, M Manela |
| Journal title | Aging & Mental Health, vol 9, no 2, March 2005 |
| Pages | pp 119-128 |
| Source | http://www.tandfonline.com |
| Keywords | Dementia ; Residents [care homes] ; Family care ; Care home staff ; Qualitative Studies ; London ; Essex. |
| Annotation | Most older people living in 24-hour care settings have dementia. The authors used qualitative semi-structured interviews to explore positive and negative aspects of the experience of 17 family carers, 30 staff, and 21 people with dementia living in 10 homes in London and West Essex. Five main themes were identified: privacy and choice; relationships in the care environment; activities; the physical environment; and expectations of a care environment by carers should they one day live in long-term care themselves. Despite no longer being responsible for day-to-day care, there was a continuing level of distress among some relatives. More striking was that residents with a range of severity of dementia were able to participate: the main theme from their interviews was the need for choice. All groups talked about improving lines of communication and about the importance of activities. The authors recommend that homes should set up formal structures for engaging with user and carer views at all levels. This would mean relatives on the board and regular meetings for residents, relatives, advocates and staff. This should lead to cultural changes where residents are perceived as individuals and care is provided in a more flexible way. There should also be a programme of activities in each 24-hour care setting, which all care staff are given time to implement. These activities need to be tailored to the individual resident rather than to the whole group. (RH). |
| Accession Number | CPA-050426209 A |
| Classmark | EA: KX: P6:SJ: QRM: 3DP: 82L: 8ES |
Data © Centre for Policy on Ageing |
|
| ...from the Ageinfo database published by Centre for Policy on Ageing. |
| |
|