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Preferences of older African-Americans for long-term tube feeding at the end of life
Author(s)A M Fairrow, T J McCallum, B J Messinger-Rapport
Journal titleAging & Mental Health, vol 8, no 6, November 2004
Pagespp 530-534
Sourcehttp://www.tandfonline.com
KeywordsBlack people ; Attitude ; Feeding aids ; Long term ; Medical care ; Terminal care ; United States of America.
AnnotationFive focus groups were conducted with African-American subjects invited from a hospital's geriatric clinic. Five broad themes emerged as reasons behind the acceptance or rejection of a PEG (percutaneous endoscopic gastronomy) tube, namely: the nature of the illness; the quality of life at the time of the decision; the concern about dependency; experiences; and religion (including issues of death). The issue of proxy also arose and contained three themes: fear of less decision-making ability; trust in family or caregivers as proxy even when the proxy choice differed from their own choices; and trust in the doctor and family to respect personal decisions. Use of a qualitative approach enabled potentially sensitive issues to be discussed. Preferences and the reasons behind these preferences may not always be anticipated by clinicians. (RH).
Accession NumberCPA-041216211 A
ClassmarkTKE: DP: MK: 4Q: LK: LV: 7T

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