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The ethics of end-of-life research
Author(s)Perry G Fine
Journal titleJournal of Pain & Palliative Care Pharmacotherapy, vol 18, no 1, 2004
Pagespp 71-78
SourceHaworth Document Delivery Service, The Haworth Press Inc., 10 Alice Street, Binghamton NY 13904-1580, USA. http://www.HaworthPress.com
KeywordsTerminal care ; Social ethics ; Research.
AnnotationThis article summarises the recommendations from a work group that met at the US National Institutes of Health in September 2002. The primary purpose for that meeting was to explore the unique characteristics of this research population and the ethical concerns that might require tailoring of "standard" clinical research processes. The proceedings culminated in a 62-page document from which open discourse and a more formal set of guidelines might emanate to both foster more and better research, while providing protections for research subjects. The document was published as a supplement to the Journal of Pain and Symptom Management (April 2003). It includes six plenary papers, each focusing on a distinct ethical domain of palliative care research. It concludes with a set of recommendations and research questions. These might best be viewed as hypotheses that need to be tested or further explored. (KJ/RH).
Accession NumberCPA-040928214 A
ClassmarkLV: TQ: 3A

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