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Involving people with learning disabilities in research
 — issues and possibilities
Author(s)Tony Gilbert
Journal titleHealth & Social Care in the Community, vol 12, no 4, July 2004
Pagespp 298-308
Sourcewww.blackwellpublishing.com/hsc
KeywordsCognitive impairment ; Research ; Participation ; Literature reviews.
AnnotationAdvances in the social position of people with learning disabilities have led to a situation where research and evaluation studies are increasingly required to include the views and opinions of people with learning disabilities. Indeed, some of the major funding bodies now insist on the inclusion of people with learning disabilities as a condition of research funding. This paper explores some of the developments and challenges in research with people with learning disabilities. The author provides a selective overview of developments, with the aim of demonstrating the richness, ingenuity and potential of research involving people with learning disabilities. The paper focuses on the ethics and philosophy of participatory research; the methodologies employed at particular points in the research process that are designed to ensure the involvement of participants in research; and building capacity in participatory research as a precondition to the further development of this approach. An investment in the capacity would enable this approach to move into the mainstream of research activity involving people with learning disabilities. (RH)
Accession NumberCPA-040816512 A
ClassmarkE4: 3A: TMB: 64A

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