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Innovative methodologies - can we learn from including people with dementia from South Asian communities?
Author(s)Heather Wilkinson, Alison Bowes
Journal titleResearch Policy and Planning, vol 21, no 2, 2003
Pagespp 43-54
Sourcewww.ssrg.org.uk
KeywordsAsian people ; Dementia ; Research ; Participation ; Methodology.
AnnotationSouth Asian people with dementia are a considerably marginalised group who remain excluded from literature commenting on service use or on the experience of living with dementia. This paper uses an examination of methods employed in a study that aimed to find ways of making contact with and gaining access to people from South Asian communities with a diagnosis of dementia, to explore some of the constraints in undertaking this kind of work. The paper opens with a discussion of the opportunities for methodological learning from the inclusion of people from this population group. The central argument is that work in the area of dementia and minority ethnic groups does not require any fundamentally different method and is only considered innovative through its inclusion of previously excluded individuals. The routes to inclusion are then outlined before dealing more specifically with some of the concerns and issues encountered during the study. The paper concludes that inclusion in research can be seen as a series of issues about power, relevant to practice and research, where individuals previously considered too difficult to reach or impaired to include can offer important insights into their personal experiences of service use. (KJ/RH).
Accession NumberCPA-040602212 A
ClassmarkTKK: EA: 3A: TMB: 3D

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