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Carer satisfaction with end of life care in Powys, Wales
 — a cross-sectional survey
Author(s)Christine Ingleton, Jana Morgan, Philippa Hughes
Journal titleHealth & Social Care in the Community, vol 12, no 1, January 2004
Pagespp 43-52
Sourcewww.blackwellpublishing.com/hsc
KeywordsInformal care ; Bereavement ; Terminal care ; Rural areas ; Cross sectional surveys ; Powys.
AnnotationA self-completion questionnaire, using a modified version of the Views of Informal Carers - Evaluation of Services instrument, was sent to all bereaved carers of all those dying of cancer in Powys between April 1999 and June 2001. Of the 301 responding, it was found that most of those who received help from district nurses or practice nurses (90%) said that they were excellent or good. However, nearly 40% of respondents reported needing more nursing help. More help was also needed from social care services. For 103 of the respondents, it was known that the deceased person wanted to die at home; only 44 did so. Only one-fifth of respondents had the opportunity to talk to someone from health and social services after their bereavement; four-fifths of this group found this helpful. 10% of respondents reported untreated pain at home; however, there was evidence for an increased proportion of those treated having received good pain relief. Although there are high levels of satisfaction with care and services received by Powys residents, deficits exist in relation to symptom control, nursing help, assistance from social services with transport and bathing, communication, and bereavement support. (RH).
Accession NumberCPA-040505202 A
ClassmarkP6: DW: LV: RL: 3KB: 99

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