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Centre for Policy on Ageing | |
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African American dementia caregivers
— the duality of respect | | Author(s) | Jane Cloutterbuck, Diane Feeney Mahoney |
| Journal title | Dementia: the international journal of social research and practice, vol 2, no 2, June 2003 |
| Pages | pp 221-244 |
| Keywords | Black people ; Dementia ; Diagnosis ; Attitude ; Family care ; Social surveys ; United States of America. |
| Annotation | African American elders are more likely to develop dementia than other US ethno-cultural elders and non-Hispanic whites. This study explored the perceptions and experiences that African American caregivers of family members with dementia encountered on their journey towards obtaining a diagnosis of dementia for their relatives. An overall theme of respect emerged from a focus group session with seven family caregivers. Reports of respecting older family members through "normalisation", thereby delaying evaluation for dementia, then encountering a lack of respect from health care providers when one was finally sought, created a duality of respect versus disrespect. This tension constituted a subtle but profound form of caregiver stress that may be unique to African American caregivers, and one that has not been considered in standardised measures. Findings inform providers about important issues to consider when working with and studying dementia caregiving with African American families. (RH). |
| Accession Number | CPA-030627205 A |
| Classmark | TKE: EA: LK7: DP: P6:SJ: 3F: 7T |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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