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Centre for Policy on Ageing | |
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| Informal caregivers' experiences of formal support in a changing context | | Author(s) | Janine Wiles |
| Journal title | Health & Social Care in the Community, vol 11, no 3, May 2003 |
| Pages | pp 189-207 |
| Keywords | Family care ; Attitude ; Usage [services] ; Domiciliary services ; Community care ; Social surveys ; Canada. |
| Annotation | As the location of long-term care of older people moves to homes and communities, and responsibility for care shifts to families, it is necessary to understand the experience of those in this situation, to ensure that support is appropriate, accessible and effective. This paper explores informal caregivers' and recipients' relationships with formal support. It draws on thematic and normative analysis of 30 in-depth interviews with family caregivers in a medium-sized city in Ontario, Canada. Interpretation reveals how confusion and lack of knowledge about services, the inflexibility and lack of availability of services, and increasing pressure on the quantity and quality of publicly-funded community-based resources combine to have a negative impact on access to and use of formal support. Differences between the ideas of relatives about their care roles and responsibilities, and of the state are shaped by policies and the situated realities of the provision of formal support. Providing care at home creates both opportunities and constraints for caregivers in their interactions with formal support. The paper highlights the difficulty of interacting with publicly-funded formal support as the costs of care are moved away from the state and onto families and individuals. (RH). |
| Accession Number | CPA-030516227 A |
| Classmark | P6:SJ: DP: QLD: N: PA: 3F: 7S |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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