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Centre for Policy on Ageing | |
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| Personal assistance service choice and decision-making among persons with disabilities and surrogate representatives | | Author(s) | Marie R Squillace, Kevin J Mahoney, Dawn M Loughlin |
| Journal title | Journal of Mental Health and Aging, vol 8 no 3, Fall 2002 |
| Pages | pp 225-240 |
| Keywords | Physical disabilities ; Services ; Informal care ; Consumer choice ; United States of America. |
| Annotation | Although people with disabilities want and expect to control their own lives, not all may be able to express these desires directly. Surrogate representatives - family caregivers, friends, or neighbours - can be key players in implementing consumer-directed programmes. Data made available through the Cash and Counselling Demonstration and Evaluation (CCDE) consumer preference study in New Jersey (NJ) suggests that surrogates can adequately represent consumers' views about satisfaction with personal assistance, and thus provide encouragement to continued investigation of the utility of surrogate representatives. Study results also replicate previous findings that those with cognitive impairments are able to express preferences for everyday matters. The research provides evidence that consumers with mild to severe disabilities are able to articulate their preferences for personal care when responding to the NJ telephone survey independently (without a surrogate). Understanding the perspective of the impaired consumer is important to encouraging consumer independence and control, to improving quality of life, and to successfully implementing consumer-directed programmes. (RH). |
| Accession Number | CPA-030515204 A |
| Classmark | BN: I: P6: WYC: 7T |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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