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Centre for Policy on Ageing | |
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| Opinions regarding who should consent to research on behalf of an older adult suffering from dementia | | Author(s) | Gina Bravo, Mariane Pâquet, Marie-France Dubois |
| Journal title | Dementia: the international journal of social research and practice, vol 2, no 1, February 2003 |
| Pages | pp 49-66 |
| Keywords | Rights [elderly] ; Social ethics ; Dementia ; Research ; Informal care ; Attitude ; Social surveys ; Canada. |
| Annotation | In many jurisdictions, consent to research on a decisionally incompetent adult can only be provided by the legal guardian. Yet, few cognitively impaired older people are legally represented. This article reports on a postal survey conducted in Quebec, Canada, to elicit the opinions of concerned individuals regarding who should decide whether an incompetent older person will participate in research. Four groups of people were targeted by the survey: older people, informal carers of cognitively impaired patients, researchers in ageing, and members of institutional review boards. Opinions were similar across the four groups, and varied with the degree of risk involved in the study. In the absence of risk, most respondents did not think that the surrogate decision-maker must be legally appointed. As the amount of risk increased, the proportion of respondents who believed consent could be provided by a significant other without legal authority decreased, while that against soliciting cognitively impaired patients tended to increase. (RH). |
| Accession Number | CPA-030220203 A |
| Classmark | IKR: TQ: EA: 3A: P6: DP: 3F: 7S |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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