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Research into communication patterns and consequences for effective care of people with Alzheimer's and their carers
 — ethical considerations
Author(s)Antony Andreas Vass, Henry A Minardi, Richard Ward
Journal titleDementia: the international journal of social research and practice, vol 2, no 1, February 2003
Pagespp 21-48
KeywordsCommunication ; Management [care] ; Dementia ; Informal care ; Social ethics.
AnnotationThe authors offer a critical account of the ethical issues arising from the conduct of a research project investigating communication with and between people who have dementia. These issues are examined in the knowledge that there are no legal precedents to guide ethical procedures when carrying out research with this client group. Yet, if such research were not undertaken, there would be no opportunity to empirically evaluate present communication and care, or to recommend alternatives to this care. This article outlines a protocol in consideration of these ethical issues. Finally, a working model of ethical procedures when undertaking research with people with dementia is presented. While it is recognised that this is a dynamic process that will change over time, a starting point is needed to begin the process of accounting for ethical issues when undertaking research with this vulnerable group. (RH).
Accession NumberCPA-030220202 A
ClassmarkU: QA: EA: P6: TQ

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