Centre for Policy on Ageing
 

 

Care at home for people with dementia
 — routines, control and care goals
Author(s)Sally Redfern, Ian Norman, Kate Briggs
Journal titleQuality in Ageing, vol 3, no 4, December 2002
Pagespp 12-23
KeywordsDementia ; Living in the community ; Management [care] ; Family care ; Friend care.
AnnotationThe nature of care as a form of social organisation in the homes of people with dementia whose care was at least partly provided by relatives or friends is examined. 20 situations were included in which the carers and those with dementia were interviewed. Each participating pair was observed for an average of 9 hours. Findings cover the ways in which carers and those with dementia accomplished personal and household care through routines and exerting control, and how they dealt with aspects such as setting and matching care goals. Accomplishing care is shown to be a major challenge for those with dementia and their caregivers, yet in most cases participants developed effective coping strategies. Three themes emerged from the findings: handling competing goals or means to goals; controlling the situation; and maintaining a preferred sense of self. The combination of conversational interviewing with observational research is shown to be of value in understanding the processes of caring and what it means to live with dementia. Policies and practices that acknowledge such expertise will go some way towards encouraging and helping people to continue, and rewarding them for the vital part they play. (RH).
Accession NumberCPA-030213006 A
ClassmarkEA: K4: QA: P6:SJ: P6:SX

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