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Centre for Policy on Ageing | |
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Out of sight, out of mind? support and information given to distant and near relatives of those with dementia | Author(s) | Amanda Thompsell, Simon Lovestone |
Journal title | International Journal of Geriatric Psychiatry, vol 17, no 9, September 2002 |
Pages | pp 804-807 |
Keywords | Dementia ; Family relationships ; Geographical distance ; Family care ; Stress ; Advisory services [elderly] ; Social surveys ; Southwark. |
Annotation | Little has been written about the impact of a person with dementia on the wider family. This paper was intended to see whether the need for information would stretch to those relatives living a long way from the patient. Using the Camberwell Dementia Case Register, the authors identified 101 individuals with dementia living with spouses or children. 64 patient-relative dyads participated. Interviews were carried out with each of: the patient; a relative who lived closer than one hour away (35 'near relatives'); and/or a relative who lived more than one hour away (29 'distant relatives'). Relatives living distantly from the person with dementia reported similar rates of subjective distress, but were more often dissatisfied with information received. 'Distant' relatives were also less likely to seek information from books or lay societies. If the whole family is to be supported in their caring role, then clinicians and the lay societies need to widen their supportive act. (RH). |
Accession Number | CPA-021024205 A |
Classmark | EA: DS:SJ: RJ: P6:SJ: QNH: IT: 3F: 82LT |
Data © Centre for Policy on Ageing |
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...from the Ageinfo database published by Centre for Policy on Ageing. |
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