Centre for Policy on Ageing
 

 

Out of sight, out of mind?
 — support and information given to distant and near relatives of those with dementia
Author(s)Amanda Thompsell, Simon Lovestone
Journal titleInternational Journal of Geriatric Psychiatry, vol 17, no 9, September 2002
Pagespp 804-807
KeywordsDementia ; Family relationships ; Geographical distance ; Family care ; Stress ; Advisory services [elderly] ; Social surveys ; Southwark.
AnnotationLittle has been written about the impact of a person with dementia on the wider family. This paper was intended to see whether the need for information would stretch to those relatives living a long way from the patient. Using the Camberwell Dementia Case Register, the authors identified 101 individuals with dementia living with spouses or children. 64 patient-relative dyads participated. Interviews were carried out with each of: the patient; a relative who lived closer than one hour away (35 'near relatives'); and/or a relative who lived more than one hour away (29 'distant relatives'). Relatives living distantly from the person with dementia reported similar rates of subjective distress, but were more often dissatisfied with information received. 'Distant' relatives were also less likely to seek information from books or lay societies. If the whole family is to be supported in their caring role, then clinicians and the lay societies need to widen their supportive act. (RH).
Accession NumberCPA-021024205 A
ClassmarkEA: DS:SJ: RJ: P6:SJ: QNH: IT: 3F: 82LT

Data © Centre for Policy on Ageing

...from the Ageinfo database published by Centre for Policy on Ageing.
 

CPA home >> Ageinfo Database >> Queries to: webmaster@cpa.org.uk