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Centre for Policy on Ageing | |
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From ritual to relationship
— a person-centred approach to consent in qualitative research with older people who have a dementia | | Author(s) | Jan Dewing |
| Journal title | Dementia: the international journal of social research and practice, vol 1, no 2, June 2002 |
| Pages | pp 157-172 |
| Keywords | Dementia ; Personality ; Attitude ; Social ethics ; Qualitative Studies. |
| Annotation | There is an increasingly relevant debate concerning consent, particularly around people with dementia, across research and practice. This article critically reviews the traditional competency-based approach to informed consent to research with older people with dementia. Currently, most researchers are not describing how those with dementia are included in the consent process, other than through an extension of the traditional competency-based informed consent method. Despite the rapid development of so-called person-centred participatory research in dementia, there is as yet little in the way of academic publications on developing methodologies or practical methods of inclusionary consent. The article also describes work in progress on a theoretical foundation and an evolving method for including people with dementia in consent processes. It concludes that a revisionist person-centred inclusionary approach to consent, which values the interests of all parties involved - including the person with dementia - is a way forward in person-centred research. It is also suggested that dementia-friendly methods must be more rigorously tested and reported. (RH). |
| Accession Number | CPA-020816202 A |
| Classmark | EA: DK: DP: TQ: 3DP |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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