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Centre for Policy on Ageing | |
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| Service use and needs of people with motor neurone disease and their carers in Scotland | | Author(s) | Edwin R van Teijilingen, Elizabeth Friend, Ayesha D Kamal |
| Journal title | Health & Social Care in the Community, vol 9, no 6, November 2001 |
| Pages | pp 397-403 |
| Keywords | Nervous system diseases ; Physical disabilities ; Informal care ; Usage [services] ; Needs [elderly] ; Evaluation ; Scotland. |
| Annotation | The Scottish Motor Neurone Disease Society conducted a study in 1996, in which 153 people were interviewed by care advisers from the Association. Respondents' levels of impairment was also assessed using a standard instrument, the Amyotrophic Lateral Sclerosis Severity Scale (ALSSS). Data was analysed using the SPSS-PC. 60% of the sample was severely disabled as measured on the ALSSS. Health services did not meet the needs of respondents in 19% of cases, and social services failed to do so according to 24% of respondents. 80% of patients with MND had an identified carer. Nearly 4 out of 10 of these carers regularly have their sleep disturbed, and some 25% would have liked to have more help. Differences were also found in service provision between East and West Scotland, with consequent differences in respondents' perceptions regarding the extent to which needs were met. As found in similar studies, the formal health and social care sectors in conjunction with voluntary organisations are only partially managing the welfare of patients with this rare progressive degenerative disease. (RH). |
| Accession Number | CPA-020109213 A |
| Classmark | CR: BN: P6: QLD: IK: 4C: 9A |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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