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Estimating the costs of informal care for people with Alzheimer's disease
 — methodological and practical challenges
Author(s)D McDaid
Journal titleInternational Journal of Geriatric Psychiatry, vol 16, no 4, April 2001
Pagespp 400-405
KeywordsDementia ; Informal care ; Costs [care] ; Evaluation ; Methodology.
AnnotationAlthough Alzheimer's disease (AD) and related disorders may have a heavy impact on informal caregivers, estimates of informal care costs have been neglected, and when included in cost of illness studies, valuations have been highly variable. Although these variations are in part due to differences in samples and the difficulty in measuring caregiving time, this illustrates the need to standardise the methodology not only for formal but also informal care. Methods used for valuing informal care are identified, together with theoretical and practical challenges in measurement. In particular, the measurement of time and its associated satisfaction or utility is complex, and valuations of time need to consider aspects of the caregiving experience which influence the marginal valuation of time spent caring. More empirical work is needed to elicit information on both the positive and negative satisfaction associated with caregiving, and to incorporate this into valuation of costs related to informal care. (RH).
Accession NumberCPA-010517206 A
ClassmarkEA: P6: QDC: 4C: 3D

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