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Centre for Policy on Ageing | |
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Working with culture
— a qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research | | Author(s) | Ladson Hinton, Zibin Guo, Jennifer Hillygus |
| Journal title | Journal of Cross-Cultural Gerontology, vol 15, no 2, 2000 |
| Pages | pp 119-137 |
| Keywords | Chinese people ; Family care ; Dementia ; Methodology ; Qualitative Studies ; United States of America. |
| Annotation | The US National Institutes of Health are making efforts to increase the representation of minority elders in ageing research. This paper's purpose was to identify sociocultural barriers to recruitment that emerged during a 4-year study of dementia caregiving among Chinese families in the Boston area. More specifically, it examines how culturally shaped conceptions of health, ageing and dementia affected the recruitment process. The paper is based on a qualitative analysis of interviews with 25 Chinese families, and of ethnographers' and interviewers' fieldnotes. Four themes emerged. First, dementia-related changes were construed as part of the ageing process rather than a disease, making it more difficult to identify dementia-affected elders and recruit families. Second, research participation was viewed as potentially harmful, because it can lead to excessive worry. Third, Alzheimer's disease (AD) carries a social stigma among the Chinese, leading families to shun formal diagnosis and research participation. Lastly, practitioners viewed research as an intrusion of no direct benefit to participants. (RH). |
| Accession Number | CPA-001026208 A |
| Classmark | TKL: P6:SJ: EA: 3D: 3DP: 7T |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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