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The role of religion and ethnicity in the help seeking of family caregivers of elders with Alzheimer's disease and related disorders
Author(s)Sue Levkoff, Becca Levy, Patricia Flynn Weitzman
Journal titleJournal of Cross-Cultural Gerontology, vol 14, no 4, December 1999
Pagespp 335-356
KeywordsDementia ; Family care ; Spiritual characteristics [elderly] ; Religion ; Ethnic groups ; United States of America.
AnnotationStages of help seeking during illness have been identified as follows: disease experience, symptom attribution, decision to seek care, and contact with care providers. These stages have not been evaluated amongst family caregivers of older people with Alzheimer's disease and related disorders (ADRD), in particular minority ethnic caregivers. In this US study, thematic analyses were conducted on in-depth interviews from 10 caregivers from four groups: African-American, Chinese-American, Puerto Rican, and Irish- American. Aside from the disease experience stage, where religious/ethnic themes were negligible, between-group differences existed in these themes at other stages. Themes of extended family support around decision making and themes of contacting religious or ethnic service organisations at the contact with providers were present. Chinese-American and Puerto Rican narratives contained themes of language barriers to care, and a lack of culturally competent services. Both Irish-American and African-American narratives showed themes of alienation from religious groups on the one hand and using prayer to cope on the other. Overall, findings revealed that religious/ethnic factors may both aid and impede the help seeking of caregivers. (AKM).
Accession NumberCPA-000127203 A
ClassmarkEA: P6:SJ: EX: TR: TK: 7T

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